Public Policy

Encouraging Responsible Genome Editing Research

Encouraging Responsible Genome Editing Research

In 2017, ASHG and 10 international organizations published a position statement on human germline genome editing in The American Journal of Human Genetics. The statement recommended against genome editing culminating in human pregnancy, supported publicly funded in vitro research into its potential clinical applications, and outlined scientific and societal steps necessary before implementation of such... Read More

Sign on to ASHG Letter Opposing H.R.1313 and Protect GINA

Posted by: Derek Scholes, PhD, ASHG Director of Science Policy As you may have heard, a bill called the Preserving Employee Wellness Programs Act (H.R.1313) was introduced last month in the U.S. House of Representatives. If passed, this bill would fundamentally undermine the privacy protections of the Genetic Information Nondiscrimination Act (GINA), a 2008 law... Read More

Protecting Genetic Privacy in Law Enforcement

Protecting Genetic Privacy in Law Enforcement

ASHG supports DNA profiling as a law enforcement tool to identify criminals and exonerate the innocent. The Society believes, however, that the use of DNA in those contexts must respect the public’s right to privacy and that DNA collection should be limited to those convicted of or reasonably suspected of having committed a serious crime.... Read More

ASHG 2016 Tipsheet: Policy and Advocacy

ASHG 2016 Tipsheet: Policy and Advocacy

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Monday, October 3, 2016 12:00 pm U.S. Eastern Time (UTC-05:00) WHEN: Tuesday through Saturday, Oct. 18-22, 2016 WHERE: American Society of Human Genetics 2016 Annual Meeting Vancouver Convention Centre 999-1055 Canada Place, Vancouver, B.C. V6C 0C3 WHAT: Invited and platform (oral) sessions and... Read More

ASHG Welcomes 2016-17 Fellows in Genetics Policy and Education

ASHG Welcomes 2016-17 Fellows in Genetics Policy and Education

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, September 1, 2016 12:00 p.m. U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) is pleased to welcome the 2016-2017 ASHG-National Human Genome Research Institute (NHGRI) Fellows in Genetics & Public Policy and Genetics & Education. Christa L.... Read More

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