Advocacy

A New Policy Platform for ASHG

A New Policy Platform for ASHG

Posted by: Derek Scholes, PhD, ASHG Director of Science Policy We are delighted to announce that ASHG has a new policy platform! Developed with the help of members and approved by the Board of Directors, the platform articulates where ASHG stands on a variety of policy issues – which issues are of key importance and... Read More

Interview with Derek Scholes, PhD, Director of Science Policy at ASHG

Contributed by TDC member Julie Jurgens May 2017 ASHG: What are some of the genetic policy items that ASHG is currently discussing? Dr. Scholes: The Preserving Employee Wellness Programs Act (HR1313) is currently a major focus. This legislation, recently introduced in the U.S. Congress, would eviscerate key genetic privacy protections in the Genetic Information Nondiscrimination Act (GINA). GINA prevents employers... Read More

Sign on to ASHG Letter Opposing H.R.1313 and Protect GINA

Posted by: Derek Scholes, PhD, ASHG Director of Science Policy As you may have heard, a bill called the Preserving Employee Wellness Programs Act (H.R.1313) was introduced last month in the U.S. House of Representatives. If passed, this bill would fundamentally undermine the privacy protections of the Genetic Information Nondiscrimination Act (GINA), a 2008 law... Read More

ASHG is Partnering with the March for Science

Posted by: Nancy Cox, PhD, ASHG President, and Joe McInerney, MS, ASHG Executive Vice President We’re happy to share that ASHG has signed on as an official partner to the March for Science, taking place April 22, 2017, in Washington, DC and at 425+ sister marches around the world. As genetics specialists and enthusiasts, we... Read More

ASHG Applauds Passage of Canadian Genetic Non-Discrimination Act

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Thursday, March 9, 2017 12:00 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) applauds yesterday’s passage of S-201, the Genetic Non-Discrimination Act, in a 222-60 vote by the Parliament of Canada’s House of Commons. Because of minor... Read More

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